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LITERATURE

This page is a comprehensive collection of publications and additional resources relevant to the EU PAL-COPD project, featuring key research in palliative and respiratory care.

Advance care planning in COPD: Guidance development for healthcare professionals
Authors: Elaine Meehan, Catherine Sweeney, Tony Foley, Elaine Lehane, Art Kelleher, Ruth Hally, Deirdre Shanagher, Bettina Korn, Mary Rabbitte, Karen Detering, Nicola Cornally.

Publication: BMJ Supportive and Palliative Care, published online: November 2019

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Palliative Care in Respiratory Disease
Authors: Claudia Bausewein, David C. Currow, Miriam J. Johnson

Publication: European Respiratory Journal, published online: September 2016

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Additional resources

Palliative care in COPD widening the scope

Kristel Johanna Maria Mooren

© Copyright 2023 Kris Mooren

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From reactive to proactive: implementing palliative care for patients with COPD

Johanna M.C. Broese

©2023 Johanna Broese, Leiden, the Netherlands

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Advanced Respiratory Disease and Palliative Care: Summary report
St. James’s Hospital Our Lady’s Hospice & Care Services, Harold’s Cross Liberties Primary Care Team Irish Hospice Foundation
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Planning for the future with COPD – a new resource
Bettina Korn, Deirdre Shanagher
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European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease
Authors: Daisy J.A. Janssen, Sabrina Bajwah, Michele Hilton Boon, Courtney Coleman, David C. Currow, Albert Devillers, Chantal Vandendungen, Magnus Ekström, Ron Flewett, Sarah Greenley, Mai-Britt Guldin, Cristina Jácome, Miriam J. Johnson, Geana Paula Kurita, Matthew Maddocks, Alda Marques, Hilary Pinnock, Steffen T. Simon, Thomy Tonia, Kristoffer Marsaa.

Publication: European Respiratory Journal, published online: 2023

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COPD in the 21st Century
Authors: Jadwiga A. Wedzicha, James P. Allinson, Peter M.A. Calverley

Publication: European Respiratory Journal, published online: March 2024

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“A palliative end-stage COPD patient does not exist”: a qualitative study of barriers to and facilitators for early integration of palliative home care for end-stage COPD
Authors: Scheerens, C., Deliens, L., Van Belle, S. et al.

Publication: npj Primary Care Respiratory Medicine, published online: 20 June 2018

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Comparing the use and timing of palliative care services in COPD and lung cancer: a population-based survey
Authors: Scheerens C, Beernaert K, Pype P, Cohen J, Deliens L, Chambaere K

Publication: Eur Respir J., published online: May 2018

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Development of a complex intervention for early integration of palliative home care into standard care for end-stage COPD patients: A Phase 0–I study
Authors: Scheerens C, Chambaere K, Pardon K, Derom E, Van Belle S, Joos G, Pype P, Deliens L.

Publication: PLoS One, published online: 19 September 2019

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Earlier palliative home care is associated with patient-centred medical resource utilisation and lower costs in the last 30 days before death in COPD: a population-level decedent cohort study
Authors: Scheerens C, Faes K, Pype P, Beernaert K, Joos G, Derom E, Cohen J, Deliens L, Chambaere K.

Publication: Eur Respir J., published online: 21 May 2020

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Early Integrated Palliative Home Care and Standard Care for End-Stage COPD (EPIC): A Phase II Pilot RCT Testing Feasibility, Acceptability, and Effectiveness
Authors: Scheerens C, Pype P, Van Cauwenberg J, Vanbutsele G, Eecloo K, Derom E, Van Belle S, Joos G, Deliens L, Chambaere K.

Publication: J Pain Symptom Manage, published online: February 2020

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Effectiveness and implementation of palliative care interventions for patients with chronic obstructive pulmonary disease: A systematic review
Authors: Johanna Mc Broese, Albert H. de Heij, Daisy J.A. Janssen, Julia A. Skora, Huib A.M. Kerstjens, Niels H. Chavannes, Yvonne Engels, Rianne M.J.J. van der Kleij.

Publication: SageJournals, published online: 18 December 2020

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External Validation and User Experiences of the ProPal-COPD Tool to Identify the Palliative Phase in COPD
Authors: Johanna M.C. Broese, Rianne M.J.J. van der Kleij, Els M.L. Verschuur, Huib A.M. Kerstjens, Ewald M. Bronkhorst, Niels H. Chavannes, Yvonne Engels.

Publication: Dovepress, published online: 22 December 2022

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The effect of an integrated palliative care intervention on quality of life and acute healthcare use in patients with COPD: Results of the COMPASSION cluster randomized controlled trial
Authors: Johanna Broese, Rianne M.J.J. van der Kleij, Els M.L. Verschuur, Huib A.M. Kerstjens, Ewald M. Bronkhorst, Yvonne Engels, Niels H. Chavannes.

Publication: SageJournals, published online: 31 March 2023

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Implementation of a palliative care intervention for patients with COPD – a mixed methods process evaluation of the COMPASSION study
Authors: Johanna M.C. Broese, Rianne M.J.J. van der Kleij, Els M.L. Verschuur, Huib A.M. Kerstjens, Yvonne Engels, Niels H. Chavannes.

Publication: BMC Palliative Care, published online: 7 December 2022

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Provision of Palliative Care in Patients with COPD: A Survey Among Pulmonologists and General Practitioners
Authors: Johanna M.C. Broese, Rianne M.J.J. van der Kleij, Els M.L. Verschuur, Huib A.M. Kerstjens, Yvonne Engels, Niels H. Chavannes.

Publication: Dovepress, published online: 26 March 2021

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A cluster randomized controlled trial on a multifaceted implementation strategy to promote integrated palliative care in COPD: study protocol of the COMPASSION study
Authors: Johanna M. C. Broese, Rianne M. J. J. van der Kleij, Huib A. M. Kerstjens, Els M. L. Verschuur, Yvonne Engels, Niels H. Chavannes.

Publication: BMC Palliative Care, published online: 10 October 2020

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Proactive palliative care for patients with COPD (PROLONG): a pragmatic cluster controlled trial
Authors: Duenk RG, Verhagen C, Bronkhorst EM, van Mierlo PJWB, Broeders MEAC, Collard SM, Dekhuijzen PNR, Vissers KCP, Heijdra Y, Engels Y.

Publication: Dovepress, published online: 28 September 2017

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The view of pulmonologists on palliative care for patients with COPD: a survey study
Authors: R G Duenk, C Verhagen, Pnr Dekhuijzen, Kcp Vissers, Y Engels, Y Heijdra.

Publication: Dovepress, published online: 17 January 2017

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PROLONG: a cluster controlled trial to examine identification of patients with COPD with poor prognosis and implementation of proactive palliative care
Authors: Ria G Duenk, Yvonne Heijdra, Stans C Verhagen, Richard P N R Dekhuijzen, Kris C P Vissers, Yvonne Engels.

Publication: BMC Pulmonary Medicine, published online: 2 April 2014

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Development of the ProPal-COPD tool to identify patients with COPD for proactive palliative care
Authors: Duenk RG, Verhagen C, Bronkhorst EM, Djamin RS, Bosman GJ, Lammers E, Dekhuijzen PNR, Vissers KCP, Engels Y, Heijdra Y.

Publication: Dovepress, published online: 20 July 2017

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Filling the Gap: A Feasibility Study of a COPD-Specific Breathlessness Service
Authors: Kris Mooren, Danielle Wester, Huib Kerstjens, Erik Bergkamp, Anna Spathis, Yvonne Engels.

Publication: Taylor&Francis, published online: 25 August 2022

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Training general practitioners in early identification and anticipatory palliative care planning: a randomized controlled trial
Authors: Kris Mooren, Kirsten Smit, Yvonne Engels, Daisy Janssen, Judith Godschalx.

Publication: BMC Primary Care, published online: 22 September 2015

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“When I am breathless now, I don’t have the fear that’s linked to it”: a case series on the potential of EMDR to break the dyspnea-anxiety cycle in COPD
Authors: Kris Mooren, Kirsten Smit, Yvonne Engels, Daisy Janssen, Judith Godschalx.

Publication: BMC Pulmonary Medicine, published online: 1 December 2022

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Early Integrated Palliative Home Care and Standard Care for End-Stage COPD (EPIC): A Phase II Pilot RCT Testing Feasibility, Acceptability, and Effectiveness
Authors: Charlotte Scheerens, PhD, Peter Pype, MD, PhD, Jelle Van Cauwenberg, PhD, Gaëlle Vanbutsele, PhD, Kim Eecloo, MSc, Eric Derom, PhD, MD, Simon Van Belle, PhD, MD, Guy Joos, PhD, Luc Deliens, PhD, Kenneth Chambaere, PhD.

Publication: Journal of Pain and Symptom Management, published online: 7 February 2020

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Is There a Need for Early Palliative Care in Patients With Life-Limiting Illnesses? InterviewStudy With Patients About Experienced Care Needs From Diagnosis Onward
Authors: Kim Beernaert, MSc, Luc Deliens, PhD, Aline De Vleminck, MSc, Dirk Devroey, MD, PhD, Koen Pardon, PhD, Lieve Van den Block, PhD, Joachim Cohen, PhD.

Publication: American Journal of Hospice & Palliative Medicine, published online: 7 April 2015

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What Are Physicians’ Reasons for Not Referring People with Life-Limiting Illnesses to Specialist Palliative Care Services? A Nationwide Survey
Authors: Kim Beernaert, Luc Deliens, Koen Pardon, Lieve Van den Block, Dirk Devroey, Kenneth Chambaere, Joachim Cohen.

Publication: PLoS, published online: 10 September 2015

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Family physicians’ role in palliative care throughout the care continuum: stakeholder perspectives
Authors: Kim Beernaert, Lieve Van den Block, Katrien Van Thienen, Dirk Devroey, Koen Pardon, Luc Deliens, Joachim Cohen.

Publication: Family Practice, published online: 6 December 2015

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Family physicians’ role in palliative care throughout the care continuum: stakeholder perspectives
Authors: Kim Beernaert, Lieve Van den Block, Katrien Van Thienen, Dirk Devroey, Koen Pardon, Luc Deliens, Joachim Cohen.

Publication: Family Practice, published online: 6 December 2015

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Referral to palliative care in COPD and other chronic diseases: a population-based study
Authors: Kim Beernaert, Joachim Cohen, Luc Deliens, Dirk Devroey, Katrien Vanthomme, Koen Pardon, Lieve Van den Block.

Publication: Respiratory Medicine, published online: November 2013

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External validation and user experiences of the ProPal-COPD tool to identify the palliative phase in COPD
Authors: Broese J, van der Kleij R, Verschuur E, Kerstjens H, Bronkhorst E, Chavannes N, Engels Y.

Publication: International Journal of COPD , published online: 22 December 2022

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Comparing Palliative Care in Care Homes Across Europe (PACE): Protocol of a Cross-Sectional Study of Deceased Residents in 6 EU Countries
Authors: Van den Block, L., et al.

Publication: Journal of the American Medical Directors Association, published online: 1 June 2016

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External validation and user experiences of the ProPal-COPD tool to identify the palliative phase in COPD
Authors: Wichmann, A.B., Engels, Y. et al.

Publication: BMC Med, published online: 22 September 2020

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Proactive palliative care for patients with COPD (PROLONG): a pragmatic cluster controlled trial
Authors: Duenk R, Verhagen S, Bronkhorst E, van Mierlo P, Broeders M, Collard S, Dekhuijzen R, Vissers K, Heijdra Y*, Engels Y*

Publication: International Journal of COPD, published online: 28 September 2017

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Implementation of a palliative care intervention for patients with COPD – a mixed methods process evaluation of the COMPASSION study
Authors: Broese J, et al.

Publication: BMC Palliative care, published online: 7 December 2022

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An official European Respiratory Society statement on physical activity in COPD
Authors: Henrik Watz, Fabio Pitta, Carolyn L. Rochester, et al.

Publication: European Respiratory Journal, published online: 2014

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Management of COPD exacerbations: a European Respiratory Society/American Thoracic Society guideline
Authors: Jadwiga A. Wedzicha (ERS co-chair), Marc Miravitlles, John R. Hurst, et al.

Publication: European Respiratory Journal, published online: 2017

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ERS statement: a core outcome set for clinical trials evaluating the management of COPD exacerbations
Authors: Alexander G. Mathioudakis, Fekri Abroug, Alvar Agusti, et al.

Publication: European Respiratory Journal, published online: 2022

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Withdrawal of inhaled corticosteroids in COPD: a European Respiratory Society guideline
Authors: James D. Chalmers, Irena F. Laska, Frits M.E. Franssen, et al.

Publication: European Respiratory Journal, published online: 2020

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EU PAL-COPD is funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HaDEA). Neither the European Union nor the granting authority can be held responsible for them [grant number 101136621]. This project is also supported by the UK Research and Innovation (UKRI) [grant numbers 10109731 and 10109782], the Ministry of Culture and Innovation of Hungary from the National Research, Development and Innovation Fund [grant number 2020-2.1.1-ED-2023-00260], and the Swiss State Secretariat for Education, Research and Innovation (SERI).

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