Literature

LITERATURE

This page is a comprehensive collection of publications and additional resources relevant to the EU PAL-COPD project, featuring key research in palliative and respiratory care.

Research Handbook on End of Life Care and Society

Authors: David Clark, Annemarie Samuels.

Publication: The Online Platform for Elgar Publishing, Sociology, Social Policy and Education subject collection: September 2025

Advance care planning in COPD: Guidance development for healthcare professionals

Authors: Elaine Meehan, Catherine Sweeney, Tony Foley, Elaine Lehane, Art Kelleher, Ruth Hally, Deirdre Shanagher, Bettina Korn, Mary Rabbitte, Karen Detering, Nicola Cornally.

Publication: BMJ Supportive and Palliative Care, published online: November 2019

Palliative Care in Respiratory Disease

Authors: Claudia Bausewein, David C. Currow, Miriam J. Johnson

Publication: European Respiratory Journal, published online: September 2016

Additional resources

Palliative care in COPD widening the scope

Kristel Johanna Maria Mooren

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From reactive to proactive: implementing palliative care for patients with COPD

Johanna M.C. Broese

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Advanced Respiratory Disease and Palliative Care: Summary report

St. James’s Hospital Our Lady’s Hospice & Care Services, Harold’s Cross Liberties Primary Care Team Irish Hospice Foundation

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Planning for the future with COPD – a new resource

Bettina Korn, Deirdre Shanagher

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European Respiratory Society clinical practice guideline: palliative care for people with COPD or interstitial lung disease

Authors: Daisy J.A. Janssen, Sabrina Bajwah, Michele Hilton Boon, Courtney Coleman, David C. Currow, Albert Devillers, Chantal Vandendungen, Magnus Ekström, Ron Flewett, Sarah Greenley, Mai-Britt Guldin, Cristina Jácome, Miriam J. Johnson, Geana Paula Kurita, Matthew Maddocks, Alda Marques, Hilary Pinnock, Steffen T. Simon, Thomy Tonia, Kristoffer Marsaa.

Publication: European Respiratory Journal, published online: 2023

COPD in the 21st Century

Authors: Jadwiga A. Wedzicha, James P. Allinson, Peter M.A. Calverley

Publication: European Respiratory Journal, published online: March 2024

“A palliative end-stage COPD patient does not exist”: a qualitative study of barriers to and facilitators for early integration of palliative home care for end-stage COPD

Authors: Scheerens, C., Deliens, L., Van Belle, S. et al.

Publication: npj Primary Care Respiratory Medicine, published online: 20 June 2018

Comparing the use and timing of palliative care services in COPD and lung cancer: a population-based survey

Authors: Scheerens C, Beernaert K, Pype P, Cohen J, Deliens L, Chambaere K

Publication: Eur Respir J., published online: May 2018

Development of a complex intervention for early integration of palliative home care into standard care for end-stage COPD patients: A Phase 0–I study

Authors: Scheerens C, Chambaere K, Pardon K, Derom E, Van Belle S, Joos G, Pype P, Deliens L.

Publication: PLoS One, published online: 19 September 2019

Earlier palliative home care is associated with patient-centred medical resource utilisation and lower costs in the last 30 days before death in COPD: a population-level decedent cohort study

Authors: Scheerens C, Faes K, Pype P, Beernaert K, Joos G, Derom E, Cohen J, Deliens L, Chambaere K.

Publication: Eur Respir J., published online: 21 May 2020

Early Integrated Palliative Home Care and Standard Care for End-Stage COPD (EPIC): A Phase II Pilot RCT Testing Feasibility, Acceptability, and Effectiveness

Authors: Scheerens C, Pype P, Van Cauwenberg J, Vanbutsele G, Eecloo K, Derom E, Van Belle S, Joos G, Deliens L, Chambaere K.

Publication: J Pain Symptom Manage, published online: February 2020

Effectiveness and implementation of palliative care interventions for patients with chronic obstructive pulmonary disease: A systematic review

Authors: Johanna Mc Broese, Albert H. de Heij, Daisy J.A. Janssen, Julia A. Skora, Huib A.M. Kerstjens, Niels H. Chavannes, Yvonne Engels, Rianne M.J.J. van der Kleij.

Publication: SageJournals, published online: 18 December 2020

External Validation and User Experiences of the ProPal-COPD Tool to Identify the Palliative Phase in COPD

Authors: Johanna M.C. Broese, Rianne M.J.J. van der Kleij, Els M.L. Verschuur, Huib A.M. Kerstjens, Ewald M. Bronkhorst, Niels H. Chavannes, Yvonne Engels.

Publication: Dovepress, published online: 22 December 2022

The effect of an integrated palliative care intervention on quality of life and acute healthcare use in patients with COPD: Results of the COMPASSION cluster randomized controlled trial

Authors: Johanna Broese, Rianne M.J.J. van der Kleij, Els M.L. Verschuur, Huib A.M. Kerstjens, Ewald M. Bronkhorst, Yvonne Engels, Niels H. Chavannes.

Publication: SageJournals, published online: 31 March 2023

Implementation of a palliative care intervention for patients with COPD – a mixed methods process evaluation of the COMPASSION study

Authors: Johanna M.C. Broese, Rianne M.J.J. van der Kleij, Els M.L. Verschuur, Huib A.M. Kerstjens, Yvonne Engels, Niels H. Chavannes.

Publication: BMC Palliative Care, published online: 7 December 2022

Provision of Palliative Care in Patients with COPD: A Survey Among Pulmonologists and General Practitioners

Authors: Johanna M.C. Broese, Rianne M.J.J. van der Kleij, Els M.L. Verschuur, Huib A.M. Kerstjens, Yvonne Engels, Niels H. Chavannes.

Publication: Dovepress, published online: 26 March 2021

A cluster randomized controlled trial on a multifaceted implementation strategy to promote integrated palliative care in COPD: study protocol of the COMPASSION study

Authors: Johanna M. C. Broese, Rianne M. J. J. van der Kleij, Huib A. M. Kerstjens, Els M. L. Verschuur, Yvonne Engels, Niels H. Chavannes.

Publication: BMC Palliative Care, published online: 10 October 2020

Proactive palliative care for patients with COPD (PROLONG): a pragmatic cluster controlled trial

Authors: Duenk RG, Verhagen C, Bronkhorst EM, van Mierlo PJWB, Broeders MEAC, Collard SM, Dekhuijzen PNR, Vissers KCP, Heijdra Y, Engels Y.

Publication: Dovepress, published online: 28 September 2017

The view of pulmonologists on palliative care for patients with COPD: a survey study

Authors: R G Duenk, C Verhagen, Pnr Dekhuijzen, Kcp Vissers, Y Engels, Y Heijdra.

Publication: Dovepress, published online: 17 January 2017

PROLONG: a cluster controlled trial to examine identification of patients with COPD with poor prognosis and implementation of proactive palliative care

Authors: Ria G Duenk, Yvonne Heijdra, Stans C Verhagen, Richard P N R Dekhuijzen, Kris C P Vissers, Yvonne Engels.

Publication: BMC Pulmonary Medicine, published online: 2 April 2014

Development of the ProPal-COPD tool to identify patients with COPD for proactive palliative care

Authors: Duenk RG, Verhagen C, Bronkhorst EM, Djamin RS, Bosman GJ, Lammers E, Dekhuijzen PNR, Vissers KCP, Engels Y, Heijdra Y.

Publication: Dovepress, published online: 20 July 2017

Filling the Gap: A Feasibility Study of a COPD-Specific Breathlessness Service

Authors: Kris Mooren, Danielle Wester, Huib Kerstjens, Erik Bergkamp, Anna Spathis, Yvonne Engels.

Publication: Taylor&Francis, published online: 25 August 2022

Training general practitioners in early identification and anticipatory palliative care planning: a randomized controlled trial

Authors: Kris Mooren, Kirsten Smit, Yvonne Engels, Daisy Janssen, Judith Godschalx.

Publication: BMC Primary Care, published online: 22 September 2015

“When I am breathless now, I don’t have the fear that’s linked to it”: a case series on the potential of EMDR to break the dyspnea-anxiety cycle in COPD

Authors: Kris Mooren, Kirsten Smit, Yvonne Engels, Daisy Janssen, Judith Godschalx.

Publication: BMC Pulmonary Medicine, published online: 1 December 2022

Early Integrated Palliative Home Care and Standard Care for End-Stage COPD (EPIC): A Phase II Pilot RCT Testing Feasibility, Acceptability, and Effectiveness

Authors: Charlotte Scheerens, PhD, Peter Pype, MD, PhD, Jelle Van Cauwenberg, PhD, Gaëlle Vanbutsele, PhD, Kim Eecloo, MSc, Eric Derom, PhD, MD, Simon Van Belle, PhD, MD, Guy Joos, PhD, Luc Deliens, PhD, Kenneth Chambaere, PhD.

Publication: Journal of Pain and Symptom Management, published online: 7 February 2020

Is There a Need for Early Palliative Care in Patients With Life-Limiting Illnesses? InterviewStudy With Patients About Experienced Care Needs From Diagnosis Onward

Authors: Kim Beernaert, MSc, Luc Deliens, PhD, Aline De Vleminck, MSc, Dirk Devroey, MD, PhD, Koen Pardon, PhD, Lieve Van den Block, PhD, Joachim Cohen, PhD.

Publication: American Journal of Hospice & Palliative Medicine, published online: 7 April 2015

What Are Physicians’ Reasons for Not Referring People with Life-Limiting Illnesses to Specialist Palliative Care Services? A Nationwide Survey

Authors: Kim Beernaert, Luc Deliens, Koen Pardon, Lieve Van den Block, Dirk Devroey, Kenneth Chambaere, Joachim Cohen.

Publication: PLoS, published online: 10 September 2015

Family physicians’ role in palliative care throughout the care continuum: stakeholder perspectives

Authors: Kim Beernaert, Lieve Van den Block, Katrien Van Thienen, Dirk Devroey, Koen Pardon, Luc Deliens, Joachim Cohen.

Publication: Family Practice, published online: 6 December 2015

Family physicians’ role in palliative care throughout the care continuum: stakeholder perspectives

Authors: Kim Beernaert, Lieve Van den Block, Katrien Van Thienen, Dirk Devroey, Koen Pardon, Luc Deliens, Joachim Cohen.

Publication: Family Practice, published online: 6 December 2015

Referral to palliative care in COPD and other chronic diseases: a population-based study

Authors: Kim Beernaert, Joachim Cohen, Luc Deliens, Dirk Devroey, Katrien Vanthomme, Koen Pardon, Lieve Van den Block.

Publication: Respiratory Medicine, published online: November 2013

External validation and user experiences of the ProPal-COPD tool to identify the palliative phase in COPD

Authors: Broese J, van der Kleij R, Verschuur E, Kerstjens H, Bronkhorst E, Chavannes N, Engels Y.

Publication: International Journal of COPD , published online: 22 December 2022

Comparing Palliative Care in Care Homes Across Europe (PACE): Protocol of a Cross-Sectional Study of Deceased Residents in 6 EU Countries

Authors: Van den Block, L., et al.

Publication: Journal of the American Medical Directors Association, published online: 1 June 2016

External validation and user experiences of the ProPal-COPD tool to identify the palliative phase in COPD

Authors: Wichmann, A.B., Engels, Y. et al.

Publication: BMC Med, published online: 22 September 2020

Proactive palliative care for patients with COPD (PROLONG): a pragmatic cluster controlled trial

Authors: Duenk R, Verhagen S, Bronkhorst E, van Mierlo P, Broeders M, Collard S, Dekhuijzen R, Vissers K, Heijdra Y*, Engels Y*

Publication: International Journal of COPD, published online: 28 September 2017

Implementation of a palliative care intervention for patients with COPD – a mixed methods process evaluation of the COMPASSION study

Authors: Broese J, et al.

Publication: BMC Palliative care, published online: 7 December 2022

An official European Respiratory Society statement on physical activity in COPD

Authors: Henrik Watz, Fabio Pitta, Carolyn L. Rochester, et al.

Publication: European Respiratory Journal, published online: 2014

Management of COPD exacerbations: a European Respiratory Society/American Thoracic Society guideline

Authors: Jadwiga A. Wedzicha (ERS co-chair), Marc Miravitlles, John R. Hurst, et al.

Publication: European Respiratory Journal, published online: 2017

ERS statement: a core outcome set for clinical trials evaluating the management of COPD exacerbations

Authors: Alexander G. Mathioudakis, Fekri Abroug, Alvar Agusti, et al.

Publication: European Respiratory Journal, published online: 2022

Withdrawal of inhaled corticosteroids in COPD: a European Respiratory Society guideline

Authors: James D. Chalmers, Irena F. Laska, Frits M.E. Franssen, et al.

Publication: European Respiratory Journal, published online: 2020