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SUPERVISORY BOARD

Supervisory Board

Luc Deliens

Professor of Palliative Care Research

End-of-Life Care Research Group, Vrije Universiteit Brussel

EU PAL-COPD Coordinator 

Koen Pardon​

Professor of Palliative Care in People with Cancer

End-of-Life Care Research Group, Vrije Universiteit Brussel

EU PAL-COPD Coordinator 

Julie Stevens​

Postdoctoral Researcher

End-of-Life Care Research Group, Vrije Universiteit Brussel 

EU PAL-COPD Coordinating Team member

Nancy Preston​

Professor of Supportive and Palliative Care

International Observatory on End of Life Care, Lancaster University

WP2 Adaptation, standardisation, and feasibility testing of ICLEAR-EU Lead

Els Verschuur

Senior project manager Palliative care in COPD

Lung Alliance Netherlands 

WP3 Training development and implementation guidance Lead

Mogens Groenvold

Professor of Palliative Care and Patient-Reported Outcomes

University of Copenhagen and Palliative Care Research Unit, Bispebjerg/Frederiksberg Hospital

WP4 Development protocol, ethics, and piloting of data collection Lead

Peter May

Senior Lecturer in Health Economics

King’s College London

WP6 Cost-effectiveness study Lead

Kim Beernaert

Assistant Professor

Ghent University, End-of-Life Care Research Group

WP7 Data analyses, incl. Subgroup and country comparative analyses Lead

Anastasiia Aksonova

Project Manager Communications

accelopment Schweiz AG

WP9 Stakeholder engagement, communication, dissemination and exploitation Lead

Agnes Csikos

Associate Professor, Director of Institute of Primary Health Care, Palliative Care Physician

University of Pecs Medical School

WP3 Training development and implementation guidance Co-lead

Sandra Martins Pereira

Principal Investigator (Research Associate Professor)

Universidade Católica Portuguesa, Ethics and Palliative Care Research Group

WP4 Development protocol, ethics, and piloting of data collection Co-lead

Yvonne Engels

Professor in meaningful healthcare

Radboud University Medical Centre

WP8 Mixed methods process and implementation evaluation Lead

Pippa Powell

Secretary General

Lungs Europe

WP9 Stakeholder engagement, communication, dissemination and exploitation Co-lead

Patricia White

Project Officer

European Association for Palliative Care

WP9 Stakeholder engagement, communication, dissemination and exploitation Co-lead

Valérie Vaccaro

Scientific Activities Project leader

European Respiratory Society

WP9 Stakeholder engagement, communication, dissemination and exploitation Co-lead

Frederick Daenen

Postdoctoral Researcher

End-of-Life Care Research Group, Vrije Universiteit Brussel (VUB)

EU PAL-COPD Coordinating Team member

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EU PAL-COPD is funded by the European Union. Views and opinions expressed are however those of the author(s) only and do not necessarily reflect those of the European Union or the European Health and Digital Executive Agency (HaDEA). Neither the European Union nor the granting authority can be held responsible for them [grant number 101136621]. This project is also supported by the UK Research and Innovation (UKRI) [grant numbers 10109731 and 10109782], the Ministry of Culture and Innovation of Hungary from the National Research, Development and Innovation Fund [grant number 2020-2.1.1-ED-2023-00260], and the Swiss State Secretariat for Education, Research and Innovation (SERI).

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